We don’t call ourselves consultants; therein lies the beauty. But with an average client relationship of over 6 years and a reputation as trusted advisors, we have evolved to take on strategic projects, not limited to: capability training, organisational design and stakeholder engagement.

Imagine helping the helpers of rare disease patients to access timely, relevant support...

The opportunity
By supporting clinicians working in rare diseases, we can help them reach more of the almost four million people in the UK who live with a rare condition.
The challenge
To support the setting up of a new charity, the Rare Disease Nurse Network (RDNN), whose aim is to form a nurse community that would benefit people with a rare disease and their families.
The work
Our work has challenged some assumptions and helped steer the RDNN’s direction. Gathering insights through interviews and focus groups with rare disease nurses and patients enabled us to help the charity founders develop their strategic objectives and communications plan. We have put in place a growth strategy, brand identity and collateral, as well as funding application templates to help the trustees convey a consistent message while seeking financial support.
The outcome

The research we did with RDNN identified that they can have most impact by ‘helping the helper’. By connecting people both locally in person and nationally online, the RDNN can use the strength of their collective knowledge to overcome the common challenges of all rare diseases.

It is still early days, but through continued support we hope to secure funding soon.